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Anyone have pNET in pancreatic tail & had distal pancreactomy?

Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (17)
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I've had constant pain that one GI thought I had Celiac's. My recent CT and MRis confirmed NET in pancreatic in tail. Did GA68 DOTATATE Pet scan that said it's localized so awaiting 2 surgical consults in San Francisco Bay Area. Hoping for laparoscopically resection. I'm not sure about any drugs though as I've just started on this journey.

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Replies to "I've had constant pain that one GI thought I had Celiac's. My recent CT and MRis..."
Turkey, Volunteer Mentor | @tomrennie | Apr 13 10:48am

@kathyfujii The ga68 dotatate scan is still how my NETs are evaluated. The ga68 dotatate scan suggests that you might have a NET Specialist. Do you? I have been managing a stage 4 pnet for over 3.5 years. It can be an interesting journey. Localized is very good. When are the surgical consults? Do you know what grade your pnet is?

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