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Did anyone have pnet in pancreatic tail and had distal pancreactomy ae
Neuroendocrine Tumors (NETs) | Last Active: 21 hours ago | Replies (12)Comment receiving replies
I've had constant pain that one GI thought I had Celiac's. My recent CT and MRis confirmed NET in pancreatic in tail. Did GA68 DOTATATE Pet scan that said it's localized so awaiting 2 surgical consults in San Francisco Bay Area. Hoping for laparoscopically resection. I'm not sure about any drugs though as I've just started on this journey.
Replies to "I've had constant pain that one GI thought I had Celiac's. My recent CT and MRis..."
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@kathyfujii The ga68 dotatate scan is still how my NETs are evaluated. The ga68 dotatate scan suggests that you might have a NET Specialist. Do you? I have been managing a stage 4 pnet for over 3.5 years. It can be an interesting journey. Localized is very good. When are the surgical consults? Do you know what grade your pnet is?