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Paul Sweeney avatar

Hello from a difficult patient in London

Prostate Cancer | Last Active: 15 hours ago | Replies (17)

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Profile picture for handera @handera

@paulsweeney

I know what you mean regarding feeling alone, deep in research and being misunderstood regarding intervention based active surveillance.

As of 2020, ~60% of those diagnosed with low risk PCa (Gleason 3+3) opted for AS, whereas it drops to 13.5% for those diagnosed with favorable intermediate risk (Gleason 3+4) and 3.1% for those diagnosed with unfavorable intermediate risk (Gleason 4+3).

These figures have significantly increased since 2010 and are most likely even higher in 2026 (see https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2822716)

This support group has wonderful folks over the entire spectrum of PCa severity and aggressiveness. Their questions, decisions, experience and personal outcomes shape their comments. While I think the majority in this group have decided on some type of active treatment, I appreciate their experiences and comments.

The one thing we can all agree upon is that a man needs to become his own best advocate and that each decision will look quite different, primarily driven by one's risk tolerance.

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Replies to "@paulsweeney I know what you mean regarding feeling alone, deep in research and being misunderstood regarding..."

@handera absolutely! You'll see from the book that our thinking is very aligned on this point.

Paul