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chaka67 avatar

Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Apr 22 11:26am | Replies (232)

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Profile picture for mrsterry0821 @mrsterry0821

@chaka67 My mother was diagnosed with perianal pagets in 2008. Absolutely no information or support on pagets. It's craziness. They were able to remove hers with a fairly minor wound and cream as well. They said that it wouldn't be if it returned, but when and where. She stumped the doctors 10 years later with a very strange cancer presentation that they couldn't quite figure out. Ultimately, when she passed away, she had breast cancer(wasn't even in her breast, lung cancer, and what somewhat presented as lymphoma or myeloma

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Replies to "@chaka67 My mother was diagnosed with perianal pagets in 2008. Absolutely no information or support on..."

@mrsterry0821, I'm sorry for your loss. Paget's work in mysterious ways. Am I understanding that pathology showed that her cancer's origin was breast cancer cells and first noticed only when metasticized to the anal region?

While the exact causes of Mammary Paget's Disease are not fully understood, it is primarily driven by specific genetic alterations and inherited risk factors. Have you had genetic testing?