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Confused and sad

Prostate Cancer | Last Active: 3 days ago | Replies (53)

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Profile picture for daddystressed @daddystressed

@surftohealth88 ive done some research on the surgical implanted ones. The reviews ive read say they tend to leak. Ive used a pacey cuff, and i wind up wet. Ive used max absorbing pull ups with two pad inserted in my pull ups. If i go to bed, I wake up soaked. I religious do my kegel and pelvic exercises. I have therapy showing different exercises, stretches, and breathing techniques. I wear External Latex Urine Sheath that I wear with clothes medical tape around my penis to secure the sheath in place. Then a tube I secure with another type of tape leading to another tube that leads down my leg to a pee bag which is also secured to the tube with tape. I have to make sure the hair is shaved or I use hair removal by hair, so the tape can adhere to my body. I cant shower this way or the tape loosens. I take sink wash ups.If im lucky to make through 5 days without it leaking im blessed. I've had two accidents since this method. The tape has left opened sores on my penis and I have a cut from the condom. Its very uncomfortable since the wrap has to be tight. Ran out of ideas and this is the only thing I can come up with that works, that allows me to work. I am a paratransit driver that drives the pace buses.

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Replies to "@surftohealth88 ive done some research on the surgical implanted ones. The reviews ive read say they..."

@daddystressed
I had surgery no incontinence, 3 1/2 years later, I had to have radiation, when cancer came back, still no incontinence. Six years later, I started having incontinence issues In the six years after that, the incontinence has gotten worse. I don’t leak when I’m laying down in bed, but if I stand up, walk around, sit down and get up, I leak a lot.

I’m having an AUS (Artificial Urinary sphincter) Install installed in June. It pretty much stops all the incontinence issues. I’ve had radiation so that is really the only option I have. If I had not had radiation, I would get a ProACT device installed. It doesn’t require hitting a button in the scrotum in order to pee.

Options like these provide long-term solutions to incontinence.

@daddystressed
You say the surgically implanted one’s tend to leak. While there might be a minimal amount of leakage that requires a thin pad, that is all, Compared to what the people that are having that treatment done have, with multiple pads every day, it’s a dramatic change in lifestyle.

Go on vacation and you don’t need a suitcase full of pads.

@daddystressed
Oh my , that is really frustrating and on top of it painful : (((, I am so sorry that you have to endure all that . : ((( Yes, sometimes those implants leak but mostly do not and when they leak it is really very minimal and very thin pad or two a day would be more than sufficient. We had here couple of members that were very satisfied with those implants and it changed their lives completely.

Also, did you hear about so called "sling" that can be placed under the bladder (via surgery) and there is the newest device named " ProAct" ? Please Google those and maybe you will find them as possible solution.

Sending you the best wishes for finding help very, very soon 🍀.