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Surgery for pilocytic astrocytoma: When will I feel like myself again?
Brain Tumor | Last Active: 13 hours ago | Replies (40)Comment receiving replies
Wow, you and your family are all dealing with a lot. I’m so sorry. I expected a rough even 6-9 months or so but didn’t expect all the emotional issues that have come about and are still hanging around. I tried therapy but didn’t find it helpful. I hear stories like yours that are so much worse and feel I don’t have a right to feel like I do and should be grateful mine isn’t worse (and I am), but it’s hard to feel grateful and also angry and anxious at the same time. I have always been determined and active and now find myself just wanting to sleep the day away to help avoid everything and try to cope with my headaches…. But I can’t sleep well anyway because of the headaches so I’m not sure why I try to cope with them that way, lol. Then I feel guilty because I have things I need to do and I need to be present for my family (but I’m cranky because I feel like crap so I’m no fun anyway). It’s been an exhausting, hard year-and-a-half post surgery.
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@ittybitty well don't beat yourself up, it is not good for you really. as to others with much worse issues that cannot be good either. you just have not found what works for you. My day i can now see how many people i know are in worse shape, i can feel sorry for them and help if i can, usually a good poke in the are saying look for a bright side and smile once in a while. it makes them think you're up to something and you are. trying to figure out how to feel better. I stay busy to help me cope. as busy as i can. This is Sunday my day of the week i do not exercise because it is my rest day. I exercise 6 days, 7th is rest and worship for some, i get up have my coffee and then decide what my day will be and thank God for having me on this side of the living. if the doctors cannot figure your headaches out with meds or treatment get a second opinion. you have to feel half way good to want to do things. I cleaned the bathroom and tub and shower, lastly took a shower. the heat felt good, no seizure today and not in a lot of pain. that means i am having a good day, could tell you 20 things that could make it better but is Sunday so i am going to send you this smile === and a hug === and some sunny vibes to maybe brighten your mood a little and lastly a special prayer for healing and comfort in know the other side of feeling better..............----prayer sent along with have a blessed day .