Hi everyone. This is my 1st post here, after having been diagnosed with refractory multifocal epilepsy at one of the leading neurological hospitals in the country back in 2017. Compared to 9 years ago, obviously conditions were much better but improvement had hit a wall. Mix & match + of various drugs now made the intensity of seizures less, but frequency remains i.e. almost daily for 10-20 sec. I believe many already know these 20 episodes is enough to cause serious disturbances to one's quality of life.

I finally decided to "prep" myself for a 2nd opinion in the event the current specialist I'm consulting decides to retire or due to unforeseen circumstances. Thus, to first get the paperwork out of the way, I decided to visit another hospital in a different country. The specialist took a look at my current list of medication and said no harm trying Briviact. It's apparently Kappra v2.0. I didn't hide the fact I seeked a 2nd opinion from my longtime specialist, and he agreed no harm trying. Just 1 problem - Briviact is not as widely prescribed where I live so it may be difficult getting supply. I will update all of you how the effect for me turns out.

I had not lived more than 3-4 days without seizure for 9 years. The 1st specialist said for me, surgery was out of the question because it wouldn't be just a small section of brain to be removed but a huge part. Had any of bros and sis here been told surgery is out of the question? Or is it just the lack of the confidence of surgeons?