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Prednisone tapering: How did you do it pain free?
Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (76)Comment receiving replies
@elizabethannr and all... What in the world? You were on a 12-day cruise and 11 hour flights?????
My goodness... You are surely doing well. I ccan't travel at all anymore. Not even week-end jaunts to near-by places I enjoy without edema issues and icreased pain, putting me in bed for a day or two. You are remarkable.
Also, with the auto-immune issues and Prednisone, I don't dare get around groups of folks with new germs. I am extremely sensitive to infection and sepsis comes shortly often, so I live a severely isolated life, as most did during Covid. I live that life almost constantly. But, enjoy my flowers and made my upstairs into a nice, comfortable bubble. My outside connections are online, texting, zooming, videos to keep my brain active and vocabulary near... and to stay on top of world events. I learn every day from YouTube about make-up for older women, fierce women! You are one, as am I!
Oh, the .5 mg reduction helps me greatly. Slow is fine now that I adjust my attitude and accept the situation. Slow in this case is ideal... ess
Bless you and may you continue to keep moving and be the healthiest you possible!
Elizabeth
Replies to "@elizabethannr and all... What in the world? You were on a 12-day cruise and 11 hour..."
@ess77 I get lymphatic massages for my edema and they are a great help to help me manage. Check around and find a therapy lab that offers them or ask your doctor to help you find one. My PCP orders mine. Many of their patients are breast cancer patients. I get ne every two weeks. Have done it for years, literally.
I also sleep with my feet elevated on a pillow simply to help overnight. This really helps. Many years ago a doctor told me that as we grow older gravity is no longer a friend.
I put a towel over my pillow because I would kick it off the bed every night. That solved that problem. My hips are on the towel as are my feet.
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@ess77 Well it was not perfect, of course. My ankles did swell about halfway through so I did spend some time with my feet up, afternoons. Also the pollen count in Paris got my sinuses congested and that turned into a sinus infection after we got home and it took about twice as long to go away. The only reason we were blessed to sustain the 11 hour flight was that it was a solo flight SFO-London. Much easier and less strain than puddle jumping. None the less it will be our last big trip in a good long while. Took longer than normal to recover from the jet lag as well, after we got back. All the same, we did manage, even at our interesting age, to check off number of spots on the ole bucket list. Including the "Springtime in Paris" that gave me the sinus infection, haha!