← Return to Started PRRT treatment: Anyone experience tumor markers increasing?

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Profile picture for rhb18 @rhb18

Just to update I have recently had my second PRRT treatment and my CgA markers have now decreased by around 20%. My biggest side effect has been fatigue. It’s encouraging to head into the third treatment with more hope. I’ve read a few recent updates from people who have finished their PRRT treatment who have said their tumours have shrunk and/or stabilised for a number of years and they are living a good life. If anyone has an encouraging personal story about their PRRT success that they are happy to share I would love to read about it as Im finding it encouraging to focus on real-life positives ☺️

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Replies to "Just to update I have recently had my second PRRT treatment and my CgA markers have..."

@rhb18 I read similar accounts before starting PRRT. Think the main determinant is grade, how many tumor cells are multiplying. Grade 1 and low level 2s can have long periods of stability, but grade 3 is faster and more aggressive. Within 6 months I needed surgery and am now on TKI (Cabometyx). The PRRT reduced the tumor substantially and made surgery easier.