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Diagnosed with sarcoma? Let's share

Posted by Colleen Young, Connect Director @colleenyoung, Jun 21, 2017

Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.

As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.

Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?

Interested in more discussions like this? Go to the Sarcoma Support Group.

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Colleen Young, Connect Director | @colleenyoung | 1 day ago
In reply to @richardlion "Dears, I was diagnosed with Osteosarcoma in my left elbow 4 years ago. It affected my..." + (show)
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Dears,
I was diagnosed with Osteosarcoma in my left elbow 4 years ago. It affected my ulna which I had an operation and replace it with a prosthesis. After several scans, one month ago it showed that my Radius has been infected which had an operation to clean it.

Previously I followed chemo treatment for 4 sessions which showed only 20% efficacy.

Can you please help find solution for my case because the surgeon is suggesting for an amputation.

Best Regards
Richard

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@richardlion, if you would like to seek a second opinion at Mayo Clinic, you can submit a request here: https://mayocl.in/1mtmR63

How are you doing? Will you have surgery?

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richardlion | @richardlion | 1 day ago
In reply to @colleenyoung "@richardlion, if you would like to seek a second opinion at Mayo Clinic, you can submit..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@richardlion, if you would like to seek a second opinion at Mayo Clinic, you can submit a request here: https://mayocl.in/1mtmR63

How are you doing? Will you have surgery?

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@colleenyoung Thanks dear for caring. Nothing has been done yet, still waiting for tumor board decision to find other solution like you suggested for stereotactic radiotherapy before operation. Thanks again

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richardlion | @richardlion | 1 day ago
In reply to @richardlion "@colleenyoung Thanks dear for caring. Nothing has been done yet, still waiting for tumor board decision..." + (show)
Profile picture for richardlion @richardlion

@colleenyoung Thanks dear for caring. Nothing has been done yet, still waiting for tumor board decision to find other solution like you suggested for stereotactic radiotherapy before operation. Thanks again

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@richardlion also I shall call your representative in Lebanon to seek advice

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