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DiscussionSurgery for pilocytic astrocytoma: When will I feel like myself again?
Brain Tumor | Last Active: 13 hours ago | Replies (40)Comment receiving replies
Replies to "@randallshields56 Part two that brings us up too having to relearn speech somewhat but mostly cognitive..."
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@randallshields56 part three. councilor and brain games to learn, retrain what is broken and do it with active seizures. Medication issues and finding what worked and what didn't. everyone is different in how they react. i have to adapt and overcome as my family here were my caregivers up to and including my grandson that lives here with my daughter and her wife and me. it was a long road leaving the hospitals. My drive is my daughter and reason for getting up every day. she not only took care of me, her stepdad had throat cancer and like next month he will be getting a new jaw because now because of radiation so much he has no jaw to eat and is like under 100 lbs. and then her mother has mouth cancer of some kind. so she drives 6 hrs one way to take them to appointments while trying to survive herself and her failing body. auto immune disease where her own blood attacks her system thinking it is an intruder. she is in pain i can not put into words. Her wife has deteriorating disk disease and also in pain so bad at night has to fight to get a good nights rest. ( we are all medicated here of some sort ) and that is every day every hour. look at me wrighting a book, actually i could but it would be long and a dramatic, funny, sad, and at times heartbreaking. i still today have issues with loosing my balance at the same time dizzy and they found a mass in my brain this last go around but believe it to be a radiation crust that has calcified and not growing. least that is there story and they are sticking to it. so a medication they don't want me on for 3 weeks then 4 infusion treatments after that. right now if you would like you can ask me what i do for a weekly routine if you would like to know. ok gonna chat tomorrow. just took my night meds and it can be anywhere from 15 minutes to an hour and i better be ready for bed. Have a blessed night. I'm Out