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Prednisone tapering: How did you do it pain free?
Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (76)Comment receiving replies
@retiredphil
I am kind of stuck with my PCP since a Rheumatologist isn't available. So my bloodwork looks good but I still feel inflammation all over.
Caught between a rock and a hard place!!!
Replies to "@retiredphil I am kind of stuck with my PCP since a Rheumatologist isn't available. So my..."
@betsyhase and all... Betsy, I love my PCP with whom I've worked over 25 years! He is superb... but, a Rheumatologist is dedicated to the autoimmune system and it's intricasies, as well as other issues, and good ones are on top of the best meds and doses for whatever. I'm thrilled with my Mayo rheumatologist who is overseeing most of my issues now, and sending me to Hemotology, Neurology, Endocronology, and specialties within those specialties and other departments as well.
That is to say, even in a large, teaching medical facility isn't possible, it is important to get yourself on the wait list or whatever to see a Rheumatologist. Perhaps your PCP will refer you for a consult asap and guide you to the right person in your area. It is not an insult to him or her, but a compliment that you trust his advice and guidance for what is best for you.
I hope you can make that transition soon and have specialized help... Blessings, Elizabeth
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@betsyhase
Bloodwork is not the full story for PMR. Many of us have PMR but the bloodwork does not show it or shows it only slightly. Two other diagnostic criteria are: 1. the site of the pain--hips and shoulders in particular and 2. does the pain go away immediately with prednisone. If those two are present then it's almost certainly PMR even though your bloodwork may not show it.
Not all PCP are familiar with the condition nor its treatment.