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HPV 16 neck journey…

Head & Neck Cancer | Last Active: 4 days ago | Replies (36)

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@toleolu sounds like you and I are in the same exact spot. I just finished two weeks, with four and half to go….my mouth is definitely undergoing some changes, dry of course, the metallic taste, all of it. No appetite, have lost 8lbs or so…feeding tube to be placed on Wednesday so hopefully I can turn the weight loss around. I can’t help but think about how much worse this is going to get in the next 6 weeks. Like you, I never had any health issues until this HPV deal….it still doesn’t seem real, but it is:(
Just know - you’re not alone. Please keep in touch on here so we can “compare notes”….

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Replies to "@toleolu sounds like you and I are in the same exact spot. I just finished two..."

@kent8692

Sure Kent, my name is Charles.

I live in Hawaii, I stumbled across this site back in late Feb, early March when I first got diagnosed. I was researching things with the idea of going to the mainland because the cancer centers here don't have Proton therapy systems, just IMRT. I was concerned about the side effects and it appeared that Proton did offer some advantages over IMRT but ultimately my care will rely heavily on my wife and I didn't want to take her away from family and friends for a month or so.

My appetite is still good, and my radiation doc says that in my case, a feeding tube will be highly unlikely. I hope he's right.

Let's keep in touch, get each other through this together.

Best Wishes

Charles