I am on Panzyga. I get it three days every three weeks.
That is the recommended dosage. 600 mls each day.
2mls/kg. Infusion time is six hours.
It makes a huge difference in my life. It helps my balance/dizziness and energy levels along with the muscle atrophy. I can finally sign my name due to the motor neuropathy my hands shook so bad I couldn’t write or sign my name.
My legs also have tremors. It gets better with the infusions.
Make sure it is given as directed by the manufacturer. Mine is autoimmune caused by my lupus, sojourns, mixed tissue disease and Hashimotos.
I have been diagnosed with several different types of neuropathy.
CIDP, dysautonomia, small fiber neuropathy, cardiac autonomic neuropathy, severe axonal sensorimotor peripheral polyneuropathy.
Cardiac autonomic neuropathy aka CAN causes blood pressure is either too high or low. It also causes arrhythmias bradycardia/tachycardia your heart beats too slow/or fast.
Neuropathy moves to anywhere in your body that you have nerves including your organs. I do not have as many arrhythmias as I used to since I started this.
I took IVIG from age 10-18. The neurologist said I should have never stopped it. She told me if I would have never stopped it I would not be in the shape I am in today.
She also told me I would be on it the rest of my life. Dr Anne Oaklander is a research neurologist. I live in Tx and went to Boston for answers. I was having problems with the motor neuropathy. It says movement disorder. They kept trying to diagnose me with Parkinson’s (negative) and then essential tremors. My tremors were due to the motor neuropathy. That’s sad I had to go to Boston to find out the truth.
I am 63.