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I don't know what to do next - I'm tired

Autoimmune Diseases | Last Active: Apr 24 1:14pm | Replies (42)

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@aspyres I thought it was just me I was finally diagnosed in 2026 but my autoimmune markers high since 2002. By the time they diagnosed me my kidneys are damaged. I have several types of neuropathy and they knew the cause was autoimmune. My son made me start taking pictures of my face because I had the butterfly rash. I finally tested positive for lupus, sojourns, Hashimotos and mixed tissue disease all at once. Second lab draw dna ds it’s genetic. Why so long my kidneys are damaged and my sed rate 126. The rheumatologist still haven’t put me on anything.

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Replies to "@aspyres I thought it was just me I was finally diagnosed in 2026 but my autoimmune..."

@artemis1886 definitely not just you. I think I am in the minority to find a rheumatologist in OKC that listens and responds. Cuts down on the frustration level! I wonder if you could contact Connected Rheumatology out of Dallas…maybe she knows someone in PA…