← Return to PMR: Please suggest important first questions to ask rheumatologist

Discussion
Comment receiving replies
Profile picture for buddysmum @buddysmum

I really identify with your comments. I’ve been diagnosed with PMR last Summer after a period of trauma and change in circumstances. I was then put on 15g Prednisone and felt immediately better. But trying to taper off this medication is quite complicated I am now on 7mg over several months and have experienced really low moods and continued probs with shoulder and hip, just enough to annoy! I also have had RA for many years and am on Methotrexate successfully for this condition. It’s frustrating that my Drs surgery deals with the PMR and a rheumatologist at hospital the RA and I feel that’s not helped. As you say there is no definitive test to completely prove PMR and I want to stop taking Prednisone quicker than I’m at right now as long term use is bad. I wish you well and that things will be smooth going forward. It’s so good to share with others and realise there are many folk on this weird journey and we’re not alone. Best wishes 🤞

Jump to this post


Replies to "I really identify with your comments. I’ve been diagnosed with PMR last Summer after a period..."

@buddysmum And I wish you well…..I am another one like others before you who has been totally frustrated with the “unknown” and exploration on our own. I was stuck at abt 8mg pred when I finally got on Kevzara. Big success, self tapered off Pred by 3 1/2 months when the Kev fully kicked in, and totally off Kev by 1yr. Good luck.

@buddysmum, is it possible to ask your Rheumatologist to manage your PMR in addition to your RA?