← Return to Diagnosed today w/ PCa. Seeking feedback w/ treatment I think I want

Discussion
Comment receiving replies
Profile picture for Jeff Marchi @jeffmarc

Did you ask the surgeon if they can spare the nerves if they do surgery? That can get you The ability to get an erection after surgery. If not, you can get an implant and they are very well liked by people that have gotten them, almost 90% satisfaction . You may have incontinence problems you may not, I didn’t have any incontinence after surgery but only about 10% of people have that. Most people can get continents after time, Sometimes it’s quicker than others.

If you get radiation, you have to realize that they do radiate the nerves. Over time that can result in not been able to get an erection. Doesn’t happen right away. Over time some people do become incontinent, but it is not as common as with surgery. I had surgery and it came back so I had radiation, Six years after radiation I started having incontinence. It’s been six years since and It has gotten worse over Time. I am 12 years past having 40 sessions of radiation and that’s the only problem I’ve had. Just today somebody posted about having proton radiation 15 years ago and now they’re having pretty continuous bleeding problems when peeing, Including clots, Because of damage to the Bladder. Here’s a link to that Discussion.
https://connect.mayoclinic.org/comment/1547497/
If you have SBRT radiation, Five sessions take care of it. It is very successful. You’re pretty young, so radiation may not be the best bet long-term. Something you need to discuss with your doctors.

Focal therapy might make sense for you. Something like that TulsaPRO That has already been mentioned by @jcf58 . That leaves the possibility of surgery or radiation later. When it’s only T2,a part of the Prostate is still there After focal therapy. Being able to get an erection and not having incontinence are pretty common.

You have to realize that the people that come to this forum usually have problems or our brand new. There’s a high percentage of people that never have recurrence.

You want to get a decipher score, as @jeff1963 mentions, so you can find out what the chance of recurrence is.

I’m enclosing a slide from a talk about Problems that happened due to radiation.

Jump to this post


Replies to "Did you ask the surgeon if they can spare the nerves if they do surgery? That..."

@jeffmarc Thank you Jeff (and everyone) for your responses thus far. I read the discussion on radiation and bladder damage. Feels like in some cases going the route of radiation is kicking the proverbial can down the road relative to post treatment side effects.

Per my Urologist, I will be scheduled for a PET scan then meeting with oncology radiologist followed by surgeon so I will get more input. Because I am super active, travel etc. I really need to nail the post treatment side effects component.

Thanks again, everyone.