@momo5512: Take a deep breath for you need to first hear that Neuroendocrine Carcinoid Tumors are usually very slow growing. You may have had this situation for quite some time, but now your digestive symptoms have led you to this diagnosis.
My small intestine (duodenum area) primary had metastasized and progressed to my liver by the time I was diagnosed too. You have entered into a community here at Mayo Connect where we will support you, listen & help with every concern, make suggestions when appropriate while always respecting you as an individual.
Please take time to educate yourself by reading the posts on this Neuroendocrine Cancer site. It is important after the testing scans, lab results and biopsy diagnosis to see a NET Medical Oncologist (with Gastro speciality if possible) for a medical consultation, for they will be the best advise on treatment for your specific case. We NET patients are all different in our disease, treatments, and how we react to side effects.
I urge you to persevere in educating yourself before this consultation to be able to ask pertinent questions and be able to absorb the guidance your NET specialist offers.
I joined several NET support organizations and believe more places to reach out for help is beneficial in times of doubt (and we all have upsetting issues arise) - check online.
This initial shock of diagnosis will pass more quickly by educating yourself about this journey and how we may survive (no cure offered, but we aim for best quality of every day!).
I hope this helps you today. We are here 24/7 and no issue is off the table. Hugs to you, Bette dbamos1945