@ejjb

Hi Erin!

I trust you are healing well and not having any issues post RAI?

Yeah, they did tell me it is rather resistant, but I had the 180 dose in the hope it would kill off the cancer as well as ablate the remnant thyroid tissue post thyroidectomy.

The two scans I’ve just had did show uptake, so I guess thats at least a positive. To be honest, I probably also had a NO iodine diet, as I pretty much had only fruit and veg. NO eggs, dairy, bread/pasta, meat/fish etc.
BUT - any other advice you may have would be most welcome and so appreciated! 🤗

Wrt the cryoablation, I am absolutely grasping at straws. Was kinda hoping that there was a “Plan B” for this rubbish we are dealing with. 🤣 I am quite opposed to the idea of having another high dose of RAI considering it didn’t do much other than ablate the remnant thyroid tissue ( which was obviously necessary ) and with all the literature I have read, it seems that the cumulative doses do pose other risks.

I’ll be chatting to them next week again to finalize the next step, but currently I am due the next high dose on the 10th June with bloods on the 27th May again. In the interim period, I will just be continuing my Levothyroxine. ( 125 mcg - last TSH was 0.56, so almost where they’re aiming for! ) They are also going to consult with the Oncologist for better pain management, as the Tramahexal they’ve prescribed hasn’t been of much help ( and I can’t stand the way it makes me feel! )

Anyway - enough of my tangent! 🤣
Thank you so very very much for your kindness and “remote friendship “

Take care of yourself! 🦋