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Have you decreased Airway Clearance from 2 down to 1 a day?
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (32)Comment receiving replies
@pjas972j
Thanks much. I will re visit the Colistin with my Pulmo who felt it would be even harder on me than the Toby. Most people seem to think it is easier to tolerate (on this forum). I have done Meropenem IV three times in the past 15 months. I wish I could take the Brinsupri and I may try again. I had severe vertigo attacks starting after a few weeks on it and felt on the verge of vertigo much of the time as well. When I started the Brinsupri my chronic pseudo infection was bad. Now it is better after recent IV but still afraid to restart the Brinsupri for fear of the vertigo coming back. I am not sure I have heard from anyone else on Mayo forum that has mucoid strain Pseudo. Usually the Cystic Fibrosis people get it. I do not have CF.
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@irenea8 I have PA . Grew it afyer lung resection. Ive had bronchiactisis since 30 yrs ago . Remained mild not much of an issue until I came to Florida. I dont know what mucous psuedo is. I have aerigenosa strain was on Cefipime IV just recently. Seemed to help push it back. I dontvwantvtobtry brinsupri at this time. Not enough info. On side effects . I neb 2x a day. I do 3,% in morning and 7% nightly. It seems if I do too much . My lungs dry out spasms and makes it harder to get mucus out. I exercise as much as I can . 5 days a week. I have moderate bronchiactisis with copd emphysema and had lung cancer. Ive never smoked . And dont drink.