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Struggling with Tymlos medicine

Osteoporosis & Bone Health | Last Active: Apr 13 12:19pm | Replies (140)

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Profile picture for njx58 @njx58

@cathyf31 There's no research on it. It's likely that a smaller dose still has a beneficial effect. I also find it interesting that the Tymlos pen does allow you to click through the different doses. Why would they have done that? You can't do it with a Forteo pen. Someone must have been thinking about adjusting the dose.

You can experiment by going up one click to 5 and see how that works. The goal is to find the highest dose that you can tolerate. It sounds like you're in a good place now.

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Replies to "@cathyf31 There's no research on it. It's likely that a smaller dose still has a beneficial..."

@njx58 Thank you. Interesting that I just received a phone call from my Healthcare provider. She is not comfortable allowing me to continue with reduced doses Beyond a week or so. Evidently my specialty pharmacist called her and said it would be off label and it sounded like it spooked her. Not sure how this will play out, because it is highly likely I will not be able to tolerate a full dose for a while. I guess my body has a week to figure it out and be able to do so. My lowest t score was a -3.0 and I really want to be on an osteoblast. However with my other failed treatments, I will have to default to an osteoclast. Not good...yet. With my side effects, my provider is not optimistic that I will be able to stay on Tymlos.