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Spinal cord stimulator support

Chronic Pain | Last Active: 3 days ago | Replies (177)

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I have had back and foot nerve pain for a couple years now. Clear EMGs and MRIs but massive lower left pain in the SI joint area (If you press your finger into my back I'd go through the roof). I got SI joint fusion-zero help. I've had every type of shot and my doctor has ruled everything out. I can't bend forward
(only squat). I can't extend my left arm out to the left without nerve pain. I can't pick up anything with my left hand and most importantly, I cannot twist to the left without terrible nerve pain in my back and left foot/toes. So here I am, going to do the trial for a SCS.

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Replies to "I have had back and foot nerve pain for a couple years now. Clear EMGs and..."

I have the same pain that you describe. I especially can’t twist to my left. Did your pain come on suddenly or gradually? Mine happened 2 weeks after a minor decompression surgery that absolutely fixed my right side sciatic pain. I felt so good after 2 weeks that I went to the gym before I even started PT and messed up my left side. Mine is also in my left SI joint area with major pain in my glute and upper thigh. It has been 7 months since the injury with very little improvement. I am 57 years old. I also had a clean mri and am in PT again and had 2 shots in my SI joint and a trigger pressure shot in my glute. I ice daily and will take advil if I have a busy day planned to help a little. I’m trying to hold off on any implants as I really want to get back to playing baseball, but I am interested in your results. Please keep us updated.

Will do. Mine's a little more debilitating in that I can manage to go to work buts that's about it, and only a couple days a week so I work reotely the other days. I can generally just sit behind a desk. If I twist to the left not only do I get the bad back pain, but I get the shocks of nerve pain on top of my foot and occasionally in the toes. Point is, I'm sitting most of the day because I cannot walk long distances. PT and chiro seem to make it worse.

@dougs72 I posted several posts above, and was saying how I had 4 fusions
This last fusion saved me. The fusion was from T10 all the way down to my pelvis. Prior to that, (praise Jesus I finally found an orthopedic specialist surgeon that does reconstructive and trauma surgeries only), every one of the surgeons didn't want to touch me (one even said i was "to complex for him, I left in tears). Meanwhile, I had the SCS in me for 8 long years inbetween other uneventful smaller fusions. The SCS did nothing. I went to the very best pain management doctor for the implant, and prior to that had the test one outside of me (wrapped around my waist). That one worked like a charm! I wanted to keep that one on me as long as I could, but they said it was only to see for one week if I got relief to be able to know if the implant would work with relief. HA! No relief after a few days. I went through needless suffering for 8 years before FINALLY finding the best orthopedic surgeon on Long Island. He removed it before doing the 3rd (I remained in ICU), and 4th (part 2), surgeries, that's how big of a surgery this was. I am now 3 months post op and in agony, but my xrays show my spine is finally straight! He had to remove part of my vertebrae, and rebuild everything. All my problems were from something called "Flatback Syndrome " and scoliosis. All my nerves were severely compressed for those long 8 years from the Flatback Syndrome, (that other surgeons did not see nor try to decompress). I suffered unbearable left leg sciatica, and am pleased to say that has eased up to very few bouts of pain. My nerves are still all messed up, but the surgeon told me the other day (at my appointment), that the nerves will take up to a year to settle down and finally find their reconnection.

But, my whole point is, if you find relief from the SCS, (not counting the out of body trial one for a week test one), then you're blessed. I wish you all the luck and hope (sincerely), you are one of the blessed ones it works for. I was told by my great surgeon they are a joke. But, perhaps you're not as complex as I was/am.

I am finally cleared for PT as of this reply to you, and will call immediately to schedule an appointment. PT works, I've had many sessions in the past.

Best of luck, and may God bless you with relief.