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I don't know what to do next - I'm tired

Autoimmune Diseases | Last Active: 4 hours ago | Replies (24)

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Profile picture for aspyres @aspyres

I just want to say I understand your frustration and you did nothing wrong. The doctor was wrong in how he treated you. I have to say my first symptoms of my autoimmune started prior to 1994, and I wasn’t formally diagnosed until 2024. There was much discouragement, frustration, and just pushing past all of the symptoms in the in between times.
I want to encourage you to keep trying, keep pushing for referrals, researching and finding different doctors. There are some good ones out there that can think outside the box, really listen, and be kind and considerate as well.

Saying a prayer for doors to open for you to reveal a diagnosis and treatment that will help.

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Replies to "I just want to say I understand your frustration and you did nothing wrong. The doctor..."

@aspyres I thought it was just me I was finally diagnosed in 2026 but my autoimmune markers high since 2002. By the time they diagnosed me my kidneys are damaged. I have several types of neuropathy and they knew the cause was autoimmune. My son made me start taking pictures of my face because I had the butterfly rash. I finally tested positive for lupus, sojourns, Hashimotos and mixed tissue disease all at once. Second lab draw dna ds it’s genetic. Why so long my kidneys are damaged and my sed rate 126. The rheumatologist still haven’t put me on anything.