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Recurrence Post RALP: Did a second opinion change your plan?
Prostate Cancer | Last Active: Apr 11 10:39am | Replies (58)Comment receiving replies
I listened to one of Dr Kwon's videos recently, in which he says that you should not start radiation until you are absolutely sure what type of recurrence you have.
I can't post a link, but it's on youtube: Prostate Cancer Recurrence, DIY Combat Manual for beating Prostate Cancer, part 2
At about 4:12
This drives me nuts, because you want to treat asap, but you're stuck in a situation where your PSA is rising, but the most sensitive test (PSMA) can't reliably determine where your recurrence is coming from. From what I've read the old Choline tests are even less sensitive, is that true?
Replies to "I listened to one of Dr Kwon's videos recently, in which he says that you should..."
@klein505 Totally agree with you! Dr Kwon often seems to contradict himself - and others.
I know he is a supposed ‘expert’ but I think SRT is the very LEAST you should do when the PSA hits 0.2.
You can always zap larger metastases if they show up later with SBRT; but if you don’t treat - and wait for visible PET - the cancer could become widely disseminated and doom you to a lifetime of ADT.
Many men are on it, but why put yourself in that position?
Phil
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@klein505 Yes that is my concern as before my RALP my PSA was 2.5 and my psma number was a 1. So sitting around waiting for PSMS detection seems really dangerous.