PNET grau 1

Posted by margariida @margariida, 1 day ago

Olá boa tarde,
Gostaria de saber se alguém fez terapia adjuvante pós cirurgia a PNET grau 1 .
Obrigada

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Turkey, Volunteer Mentor | @tomrennie | 1 day ago

Hi @margariida. I am personally unaware of any adjuvant therapy after surgery for NETs specifically a Whipple for a PNET. Understanding how difficult the Whipple procedure is, I appreciate your concerns. I am tagging @hopeful33250 on my comment. She has had multiple surgeries for NETs. I want to see, if she has any additional input on adjuvant therapy after NETs surgery.

Teresa, Volunteer Mentor | @hopeful33250 | 9 hours ago

Hello @margariida and welcome to Mayo Clinic Connect. While I have not had PNET surgery, I have had three surgeries for NETs in the duodenal bulb. As the margins were clear and there was no apparent metastasis, I did not require any adjuvant therapy.

On Mayo Connect, several members have PNETs and have received different types of chemotherapy. Here are some of those discussion groups:
--New Approved Drug for Pnets
https://connect.mayoclinic.org/discussion/new-approved-drug-for-pnets/
--Is Everyone with PNETs on Creon?
https://connect.mayoclinic.org/discussion/is-everyone-with-pnets-on-creon/
How long ago was your Whipple procedure, @margariida. How are you feeling now?