← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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@anitasharma

Good day. Thank you for updating us. One year nearly. It is amazing how time passes and the transplant portion takes a back seat to todays this and that. I feel sometimes i need to change my habits to see why something is happening. I have gotten up most days at 5am since my transplant. Living in So Cal, early gets me outside and moving.
I just went in my portal and saw i had education topics to read before my treatments. I never read them.
I note on one it says to track energy levels. When might i do most activities. Always keep your transplant team informed.

Because of my osteopenia diagnosis i am on Vitamin D, Pharmacy strength. Drisdol i think and i take it once a week.
Drisdol is a prescription form of vitamin D2 (ergocalciferol) used to treat vitamin D deficiency-related conditions such as hypoparathyroidism, rickets, and hypophosphatemia.
Uses
Drisdol is primarily prescribed to treat hypoparathyroidism, a condition where the parathyroid glands do not function properly, leading to low calcium levels in the blood. It is also used for rickets, a disease characterized by softening of the bones due to vitamin D deficiency, and familial hypophosphatemia, which involves low phosphate levels in the blood. Additionally, Drisdol may be used for other conditions as determined by a healthcare provider.
I was not aware Vitamin D had other uses. Maybe Lori or another monitor knows. I will search on mayo today.
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IMPORTANT

TODAY is my 2-year Birthday!! My transplant of cells was on April 9th, 2024. I am not sure if i had gone to another hospital if it would be the same results. My research study for GVHD is likely why i have had few bad side effects. Side effects i have now originated with my breast surgery. Neuropathy, dry skin, brittle nails and blood clots. Estrogen loss and chemo plus a body that makes blood clots.

I am grateful to be doing as well as i am.

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Replies to "@anitasharma Good day. Thank you for updating us. One year nearly. It is amazing how time..."

Happy Rebirthday!! @katgob Spring, a time for Renewal for so many of us! Congratulations on Cell-ebration #2! You have been the “Poster child” for how this is all supposed to go! And I so appreciate the input, advice and the encouragement you’ve given all of us over the past couple of years. Not only in the BMT group but also in the breast cancer support group.
You are a force, my dear! Your positive attitude along with your tenacity, resilience and cooperation with your medical teams have gotten you through some incredibly challenging times. 🥰 Time to Cellebrate!! 🧬🎈🧬 LOL Those are supposed to be DNA strands and instead they look like bikini tops! 😂

@katgob
Hello, I just wanted to mention that I have osteoporosis and osteopenia, at least in part due to the high steroids I was taking for months to treat my skin GVHD. I will have another DEXA in one week so I will get a recent update but in addition to all of my hiking and weight lifting I’ve been using a device called Osteoboost, an FDA approved vibration device to treat/prevent bone loss. If it sounds of interest to you just Google it and it will give you the information. Congratulations on your Cell-abration! We all rise together. ❤️

@katgob Wishing you a hearty congratulations and all the best wishes on your 2 year transplant birthday! Wow! My husband and I are thrilled for you. We are approaching his 2nd transplant birthday on June 12! Thankful for each and every day and of course, his donor in Germany.
Sending big hugs!
Mary and Dane