← Return to Recurrence Post RALP: Did a second opinion change your plan?

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Profile picture for mlabus3 @mlabus3

Happy to share what I know, or think I know. I got a Decipher before and after, which was helpful, i think. My Decipher went from .93 to .75 - still high risk, but a little comfort. Also went from Luminal Proliferating to Basal Immune, a more favorable type of cancer. They say that the difference is because they are working with the actual tumor after surgery, as opposed to a microslice in a biopsy. I had to talk my RO into it, but i think it was worth it. Doesnt change the treatment plan, but i feel better!

Not sure I would trust a 2011 study on uPSA, there must be more current ones. but i think there is less precision and more grey area in uPSA. Your still under .05, which is where they indicate you might want to start salvage.

I also got an artera ai test, where is showed me "low risk". go figure. thats a new AI-based test that rolls up everything they know about prostate cancer, all the studies and spits out a risk factor based on all that. Its pretty new, and not sure what to make of it.

I am not sure about the type of radiation, (im using Johns Hopkins) they dont have the MRI guided treatment either. although they say that the MRI precision isnt as valuable in salvage as it is in with the prostate intact. And frankly i dont know if i can lay in a MRI for an hour at a time! And they apparently can overlay the MRI into the CT scan. Still not real time, but better.

Its scary, and the thought of long term hormones and weeks of radiation is not comforting. But it beats the alternative. im just hoping for low side effects. Pretty confident that this will wipe it out. im still at the very beginning, but happy to continue sharing what i learn.

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Replies to "Happy to share what I know, or think I know. I got a Decipher before and..."

@mlabus3 Yes sounds like our treatment times may overlap. Best to you.