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Transoral outlet reduction (TORe) for severe dumping syndrome
Bariatric Surgery & Weight Loss | Last Active: 2 days ago | Replies (8)Comment receiving replies
I have this dumping syndrome, but only recently. I went to the endo yesterday and left crying. He said, “you have a phase 1 followed by a phase 2 insulin response. Stop eating carbs.”
I tried to engage him in a conversation as I have been reading that GLP-1’s (although it sounds counter productive) will slow the digestive process down enough to stop the syndrome.
I only started having this recently and I am 18 years post bariatric. Seven months ago I stopped all alcohol (beer and wine) and I also read that could be the culprit? I think before I quit that I didn’t miss carbs at all. But after quitting I have re introduced a few low glycemic carbs, but nothing crazy.
My A1C has been under 6 since my surgery, so semaglutide was out of the question. But wearing a CGM I discovered my BS shoots up to over 250 and then plummets to under 70. It’s dangerous, I would fall if I wasn’t mindful and I am afraid that could happen. I get chills and need an electric blanket to recover.
My frustration is over the roof. I really don’t want more surgery, but I need to be able to function.
Has anyone tried out been suggested to use semaglutide for this?
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@dig2dye2
I was going through the same thing, 13 years post-surgery. Spikes then low blood sugars. No one suggested GLP-1 for me, but I talked to a nutritionist about diet changes. I could not get it under control and saw two providers in endocrinology who had different opinions. One was against the TORe and the other recommended. I decided to do TORe and have not had any hypoglycemia events since. But I did have some post surgery issues and ended up in the hospital with a bleeding ulcer. No one could tell me for sure what happened. I was following all the diet restrictions. But everyone is different. All recovered now.
Using CGM prior to surgery to record what was happening was helpful and helped me know when my blood sugar was dropping, and I needed to eat something. I actually turned off the alarm because it kept going off.
Did your endocrinologist suggest follow-up appointments with a nutritionist, or tell you what to do when you have an episode?