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Does Pluvicto work? What's the prognosis?
Prostate Cancer | Last Active: Mar 8 1:16pm | Replies (66)Comment receiving replies
Saw the radiation safety officer yesterday, along with Radiation Dr. and nurses...When I asked how long pluvicto would extend life vs. chemo, he said 4 months! Really?? I don't get it and I don't understand where they get this info from.
Also, regarding safety of Pluvicto. As the spouse, they said my husband could sit in the back seat and we could drive the 20 min. home and that would be find. But, we're not 6 feet apart. I asked if he could take a Taxi Van so he is further away in the back seat, and they said that wasn't allowed because he's not allowed to be in the public where they don't have consent. Also, someone has to wheelchair my husband out to the main door of the hospital and that's another 10 minutes at least. Then we have to go back the next day for another trip to the hospital for a scan, so another 20 minutes back and forth and also close contact with the wheeling of the wheelchair. This all makes me very worried.
Then, we sleep in separate rooms with a wall between us, but only one foot between the end of this feet to the bedroom wall, and then my head is right there on the other side of the wall.
I think I should just stay in a hotel for 2 nights as we don't have a separate bathrooms and my husband has to pee in urinals...so lots of potential for splashing and spilling...OMG ...this all sounds so horrible...
What do other people do? Do they stay in hotels...? or maybe they have larger houses and separate bathrooms and maybe their husbands drive?
Replies to "@northoftheborder Saw the radiation safety officer yesterday, along with Radiation Dr. and nurses...When I asked how..."
@cal77
Here are the instructions Mayo Clinic gave to one of their Pluvicto patients
For three days: drink at least eight glasses or water or other non-alcoholic liquid each day.
For one day: use separate bathrooms when possible.
Males should sit while using the toilet to prevent splashing of urine.
Clean up spilled urine yourself. Wipe with damp toilet tissue and flush down the toilet.
Flush twice, and close lid if applicable.
Contact with children under 10: For one day, Do not be closer than arms' length for an extended period of time.
Contact with pregnant women: For two days, sleep in separate bed from your partner if they are pregnant.
It is safe to share a bed with a person who is not pregnant or under 10 years old
You may travel home by car or plane immediately after treatment.
You may stay in a hotel the night of treatment.
@cal77
I'll chime in again, although I think I did re: a similar post.
It's not so much the physical proximity, it's the bodily fluids. I don't see how sleeping in 2 beds, no matter how close they are together...it's most likely the possibility of overnight sweating. The same for any of the bodily fluids...Sure, I am concerned about anyone around me and chose to hibernate for 3-5 days...One could say that's too much, but I think about...shopping?...sure, I can be 6 feet away, but what I touch the cashier touches, monies exchanged, handling food you may put back on the shelf, a cough in the wrong direction, etc.
Use common sense, but I think you might be too fearful of it...in the car, just have your husband wear a mask, be fully clothed and wear nitrile gloves...When he pees, just don't miss...and flush twice. Hospitals know the parameters, they'll deal with the ancillary equipment.
You'll be fine!! Keep us informed!
Blessings
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@cal77
There is no standard amount of time. Pluvicto works. Four months would be on the Short side.
The guy that runs the Advance prostate cancer online forum for the reluctant brotherhood had his Pluvicto treatment about four months ago. His treatment was so successful that after three treatments, his PSA dropped a .05 and he did not take any more treatments, holding them off till later. His PSA has stayed close to that since the Treatments. He’s had prostate cancer for 12 years and has had almost every treatment you’ve ever heard of.
The biggest problem is that it is not successful for everybody, about 40% of people don’t get good results. The other 60% vary from 50% reduction in PSA to a major reduction in PSA. You need to see what happens to figure out how well it’s going to work for him. Some people get 18 months out of it.
You’re getting a little overworked about the radiation. I know some people that have been told many fewer requirements for keeping apart. You don’t have to worry about it going through a wall.
A 20 minute ride is not enough time for a significant radiation transfer. You could always rent a bigger car for two days, But I bet the doctors will tell you that’s not a problem.