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Hello Geri,
I'm hugging you now, I felt so alone, I felt anguish, until you came forward and shared your same affliction, I am so sorry you are suffering, I do not have Occipital Neuralgia as the condition is a piercing, throbbing, or burning pain that often feels like an electric shock, originating at the base of the skull and spreading to the upper neck, back of the head and behind the ears but I do have extreme sensitivity to touch (allodynia) on the scalp, often making brushing hair, wearing a hat or showering painful, I will apply a heating pad as you suggest.

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Replies to "Hello Geri, I'm hugging you now, I felt so alone, I felt anguish, until you came..."

@lasthurrah9
I have had the same symptoms for 2 1/2 years with no answers, along with vertigo episodes and constant dizziness, off balance, disequilibrium, eye strain for the last year. MRIs, CT, X-rays, all show nothing. It’s debilitating. I found that heat aggravates it and so does ice. I’m at a loss since I can’t tolerate medications with the already constant dizziness I have.

@lasthurrah9
I just realized I replied to you before today. I also have allodynia. It’s so hard for people to understand if they don’t have all the pain we suffer from. I try very hard to stay active. I started playing pickle ball after 11 months of not doing much of anything. It takes my mind off the pain and doesn’t make it worse. Google meditation for chronic pain on utube.