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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: 1 hour ago | Replies (2016)Comment receiving replies
@marciai
Are there any blood results that indicate a hematologist should take a look? My rheumatologist is concerned that I may have MGUS so he has referred me to a friend of his in hematology.
Replies to "@marciai Are there any blood results that indicate a hematologist should take a look? My rheumatologist..."
@kjoed53 I was investigated by a hematologist and she believed I had MGUS as well. When I tried to confirm it with a hematologist at a local teaching hospital he explained why I did not have it and she agreed with him. This was several years ago when less was known about MGUS. I had a friend, not a PMR patient, who was Dx with MGUS about 3 years ago. She was re-evaluated recently and they removed the MGUS diagnosis. So please proceed with some caution. I would say that PMR and MGUS must share some symptoms in some cases since I know of other PMR patients having been evaluated for MGUS and not getting the Dx. Your rheumy is correct to send you for evaluation.
@kjoed53 I was seen by a hematology oncologist last fall who did not find anything concerning in my bloodwork, although I don’t recall any discussion of MGUS.
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@kjoed53 I was diagnosed with MGUS in late 1990’s
It has had no issue with my PMR, am checked annually.
Good luck