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Does Pluvicto work? What's the prognosis?
Prostate Cancer | Last Active: Mar 8 1:16pm | Replies (66)Comment receiving replies
@deccakid wrote ❝I also have the questions about the info from the manufacturer..."15.3 months vs. 11 months"...What the hell is that supposed to mean??? If I had 11 months to live and my Doc didn't tell me that, I'd be pissed!!!❞
And I'll just repeat that while the median is useful for quantitative comparisons in a time-limited clinical trial, it doesn't tell us much as patients.
Here's a simple (albeit extreme) example: let's say we have 9 patients in the study group in a tiny trial. 4 of them survive 2 months, 1 survives 3 months, 1 survives a year, and 3 survive 10 years.
While the median survival is 3 months, the *mean* survival is nearly 43 months; however, they can't know that at the end of the 4-year trial, because some of the participants are still alive at that point, so they stick with the median, which they do know (once half of the participants are gone).
I'm not saying the gap is usually that big, but when you hear that there's a "median" overall survival of 15.3 months, don't assume you have 15.3 more months to live. That's just not what the number means. It's a scientific convenience, not your personal destiny.
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@northoftheborder
Saw the radiation safety officer yesterday, along with Radiation Dr. and nurses...When I asked how long pluvicto would extend life vs. chemo, he said 4 months! Really?? I don't get it and I don't understand where they get this info from.
Also, regarding safety of Pluvicto. As the spouse, they said my husband could sit in the back seat and we could drive the 20 min. home and that would be find. But, we're not 6 feet apart. I asked if he could take a Taxi Van so he is further away in the back seat, and they said that wasn't allowed because he's not allowed to be in the public where they don't have consent. Also, someone has to wheelchair my husband out to the main door of the hospital and that's another 10 minutes at least. Then we have to go back the next day for another trip to the hospital for a scan, so another 20 minutes back and forth and also close contact with the wheeling of the wheelchair. This all makes me very worried.
Then, we sleep in separate rooms with a wall between us, but only one foot between the end of this feet to the bedroom wall, and then my head is right there on the other side of the wall.
I think I should just stay in a hotel for 2 nights as we don't have a separate bathrooms and my husband has to pee in urinals...so lots of potential for splashing and spilling...OMG ...this all sounds so horrible...
What do other people do? Do they stay in hotels...? or maybe they have larger houses and separate bathrooms and maybe their husbands drive?