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Struggling with SI joint pain, together with Greater Trachonteric Pain Syndrome- glute burning and rebound after pregabalin—any similar experiences?

I’d really appreciate hearing from anyone who’s had something similar.

I had steroid injections into my SI joint and L5/S1 about 4 months ago and since then have had ongoing nerve irritation, especially burning pain in the glutes (worse at night and early morning).

I took pregabalin for a month but had to stop due to dizziness. I’m now about 3 weeks off it and seem to be having rebound nerve pain that’s actually worse at times, especially at night.

I’ve been trying to manage with gentle movement, pacing, ice/heat etc. Some days it feels like it’s easing, then I get a flare (often early morning around 3–5am).

I’m now considering starting gabapentin but feel quite anxious about side effects and withdrawal after my experience with pregabalin.

Has anyone else had:
• Nerve irritation after SI joint injections?
• Worsening pain after stopping pregabalin?
• Early morning flares like this?

And did gabapentin help you—or not?

It’s been quite exhausting and a bit demoralising, so it would really help to hear others’ experiences.

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Replies to "Struggling with SI joint pain, together with Greater Trachonteric Pain Syndrome- glute burning and rebound after..."

@puffinmum stay far away from gabapentin. Nasty drug. PT is recommended. Exercise/stretching are options. No more shots.

@puffinmum for the last four years I have had life changing pain around glutes so joints lower sacrum and tried everything with injections and nerve desensitisation procedures . None of which helped and like yourself it just flares up and keeps me awake at night and in tears . Nothing showed on any scans on the sacroiliac joints and when I tried to exercise to strengthen it just made things worse . I had a radioactive CT scan which showed up L4/5 disc degeneration so I thought there is hope if I get that fixed. It was a major operation from the front and I am now four half months post op. It was the worst thing I could have done as not only did it not solve the original pain but it has made me far worse then ever before . I am using a stair lift and I cry every day . I have always been very active up until the op and I feel now that I will never recover . I take a very low dose pregabalin at night only but I started to take a Zopiclone for sleep when in hospital and now trying to come off is awful . I can’t see a way out of this tunnel of pain and no sleep therefore no energy and no functioning. I hope this story puts you off of any major operations and possibly steroid jabs etc . As for pregabalin well I don’t know . I only know that I don’t want to increase it and yes I think it does make nerve pain worse in my case but I am at a loss as to what to do now . If anyone else out there can help with advice I would appreciate it. I am very sensitive to any drug .