@cit10jetjockey
Did you have an emg or nerve conduction study to rule out or in Large Fibre?

“ Long fiber neuropathy (also known as large fiber neuropathy) without pain is often described as the "numb and unsteady" type of peripheral neuropathy. While many neuropathies involve burning or stinging, damage to the large, myelinated sensory nerve fibers leads primarily to a loss of sensation, poor balance, and weakness rather than pain”

Tis what I have and why I cringe when people say congrats on no pain or lucky to not have pain! Its actually not a good thing as its part of the reason for bad balance, ataxic gait and possible loss of mobility.

I always wandered why I didnt have the pain others described (did have uncomfortable sensations) as I was originally told I had just neuropathy. A year later I was retested and it was confirmed as large fibre sensory motor neuropathy. I found the original test report online and that was the original diagnosis but again it was never explained to me. My stomache dropped when I googled what this meant as originally I thought I would have to learn to accept pain.

Anyhows I wander if that is the same reason you are not feeling pain? I also wander why the doctors are still useless even now that I know my exact diagnosis.

Sorry for lengthy message but this disease has effed my head up cognitively as well.

Oh my left leg is also weaker than the right. This disease is bullshit man