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Brensupri and related C Scans

MAC & Bronchiectasis | Last Active: 4 days ago | Replies (10)

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Profile picture for maryjill @maryjill

After 3 months taking Brinsupri I ended up in the hospital with pneumonia , infections in my teeth and gums and neutropenia with a WBC of 0.8. 3 days of not taking Brinsupri and my WBC was 3.1. I had a bone marrow biopsy which didn’t show any blood cancers etc. Some drs. think it could have been caused by the Brinsupri, some don’t think so.

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@maryjill thank you for your information. I have recently fought PA with an IV medication for like 2 weeks after being told my lower pnuemonia had spread to both lungs after being on doxyclycline that didn't work. My white cell count went down below normal . My ID doctor wanted me to try brinsupri . I was not wanting to try anything new without having my white count come back within normal limits. Two many side effects I see that I dont want to experience and not know whether or what may cause those side effects. Ive opted for holding off on brinsupri at this time. Dealing with this psuedanoma aerugenosa is enough on my body. I will keep you posted on my cell counts and any other info I obtain.