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Hi Dave, I am sorry you are going through all of this. I wish you luck with the kidney. I am 67 with UC and have never been in clinical remission. I am possibly a candidate for the bag, as low grade dysplasia was found and possibly invisible dysplasia in the rectum. I honestly dont know if I could handle a bag. How did you adjust and how long did it take you? Did you have to curtail any activities? thank you Bill
Replies to "Hi Dave, I am sorry you are going through all of this. I wish you luck..."
@wjn Dave, I had a Ileostomy 3 months ago while they figure out why a surgery removing a portion of the j pouch at the cuff and reconnect it caused it to close as it healed. Anyway, having a Bag does have a impact on your life But I can tell you though time it gets easier and at first it was awful but now finding the right appliance and learning how your system works If I had to keep it I would be fine I'm able to do anything I could do before the Bag.
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@wjn Hi Bill! Having an ileostomy is an adjustment, but for those of us with IBD, *not* having a diseased colon can be a welcome relief.
Most people find they can handle having an ostomy okay. Time to recovery really depends on what your health was when you had the surgery.
I know people who golf with an ostomy (I don't golf). Personally, I scuba dive, swim, travel, lift weights, do yoga. If you're able to do an activity now with UC that's not in remission, I'm pretty sure you'll still be able to do it after the ostomy.
What activities do you have concerns with?