← Return to Home stretch: how do you know you have arrived?

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Profile picture for cazwell50 @cazwell50

It is very difficult to know. I empathise with this dilemma but having got through I can tell you my story. As I tapered stiffness returned and a little pain. My blood markers were ‘no inflammation’ from the time I started prednisone so I took it that prednisone was working. When I got to 1mg I still felt stiffness and when I stopped completely I had stiffness and some pain which gradually lessened over 12-18 months. I now know that this is normal. There is no magic end to it once finishing the medication but I found exercise slowly helped me regain strength and reduced stiffness. Now, I am entering my third year since stopping prednisone. I go to the gym twice a week for 3o minutes sessions and Pilates once a week in a small group on reformers. The only pain I get now is muscle pain from the exercise! Very minor stiffness when I get up but a few stretches and that’s it. Best of luck and kick the pills if you can as it is a nasty medication.

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Replies to "It is very difficult to know. I empathise with this dilemma but having got through I..."

@cazwell50 I agree with your comments 100%. After tapering from prednisone, the gelling remained and the rheumy wanted to keep me on 2mg indefinitely. I decided to tough it out and the gelling eventually went away. My strength and energy level are lower than before PMR or on prednisone, despite weights and tai chi. But I'll take that over prednisone side effects any day. My journey has been complicated by osteoarthritis and a cecal volvulus, but I hope PMR is behind me.