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Worsening of pain (arthritis)

Posted by joycelowe1 @joycelowe1, Jan 8, 2017

I have pain in my left hand, at the base of my left thumb. I was managing it with Blue Emu per Dr Phil. It worked fine until now. I know arthritis is not curable but does anyone have any advice about things to try? I've seen the omega XL commercial. Does anyone out there have any experience with these pills or have heard anything about them?

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uisge | @uisge | 7 hours ago
In reply to @lopezalice1313 "Hello, I am new to the group and not sure if this is where I should..." + (show)
Profile picture for lopezalice1313 @lopezalice1313

Hello, I am new to the group and not sure if this is where I should be posting, but I recently had a liver transplant in October and as of the beginning of February I started experiencing severe joint pain. The pain is in my hands wrists elbows shoulders hips knees ankles and toes. I recently started feeling pain in my jaw as well, I did bring it up to my doctors but I have yet to have some kind of treatment or relief. I haven’t ever experienced this type of pain.

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@lopezalice1313 That's a really miserable thing to have to go through! Did you consider a rheumatologist? They might be able to help. another question - did you take any antibiotics? I'm guessing you're on some kind of anti-rejection medicine(s)? You might have to do a little research on your own, but a rheumatologist might be a big help.

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Mentor
Lori, Volunteer Mentor | @loribmt | 5 hours ago
In reply to @lopezalice1313 "Hello, I am new to the group and not sure if this is where I should..." + (show)
Profile picture for lopezalice1313 @lopezalice1313

Hello, I am new to the group and not sure if this is where I should be posting, but I recently had a liver transplant in October and as of the beginning of February I started experiencing severe joint pain. The pain is in my hands wrists elbows shoulders hips knees ankles and toes. I recently started feeling pain in my jaw as well, I did bring it up to my doctors but I have yet to have some kind of treatment or relief. I haven’t ever experienced this type of pain.

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Hi, @lopezalice1313 I’m sorry to hear you’re having so much pain in your joints. That’s so miserable and impacts your daily life! Since this seems to be a new development several months after your transplant it’s pretty normal to consider it might be connected in some manner.
You’re not alone in this complaint. There is a discussion in the forum with other liver transplant members sharing their experiences. Here is a link to that discussion started by @grateful76 a few years ago.
https://connect.mayoclinic.org/discussion/joint-pain-liver-transplant/
You mentioned that you brought this new symptom up with your doctors. Have any of them run tests to check the trough level of your anti-rejection medication? Are you taking any other meds at this time?

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flynnoverby | @flynnoverby | 3 hours ago
In reply to @uisge "@flynnoverby Did you ever talk with your primary? if so, with what results?" + (show)
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@flynnoverby Did you ever talk with your primary? if so, with what results?

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@uisge I met with him April 3rd, He told me to try something like Voltaren. If that didn't work, see him for a recommendation for PT or an injection. The next step would be surgery to remove the joint.

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