← Return to Prednisone tapering: How did you do it pain free?

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@tweetypie13
I started a pain journal that includes activity and diet when I started prednisone. I'm having side issues that are increasing with time... elevated BP and HR, brain fog, PVCs and PACs, acid reflux, balance issues and shortness of breath. My sleep is horrible. How much of that is prednisone side effects, I don't know. I know that I don't feel any difference in pain between 25mg and 20mg. I'm seeing my primary care today and I'm also scheduled to see a hematologist because I probably have something else going on besides PMR based on my blood work. Tylenol did nothing for my pain and neither did ibuprofen. I have been my own advocate since October and I will continue to do so. I know I'm walking a fine line right now trying to balance everything, but six weeks ago I couldn't walk without a cane or do anything without extreme pain. This is nothing compared to where I was at the beginning.

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Replies to "@tweetypie13 I started a pain journal that includes activity and diet when I started prednisone. I'm..."

@kjoed53
Thanks for sharing. I need to start a pain journal. I know my sleep was terrible when I was taking 5mg of Prednisone in the evening for awhile. It helped in the beginning but it got worse over time. I am still pretty new to all these symptoms.

@kjoed53
Well done on all counts. It is a miserable bumpy road of trial and error, and you seem to have a good handle on it. Stay grateful for all the “wee little” moments of improvement, they will carry you through. No one can appreciate those moments like another PMR colleague, and I totally get it. This blog became my best supporter.
🤞🙏