Does anyone have both MUTYH colon cancer gene mutations (MAP)?

Posted by bevjoy @bevjoy, Feb 19, 2022

I have autosomal recessive genetic colon cancer gene mutations (biallelic) called MUTYH-Associated Polyposis (MAP). This means that both of my parents were carriers and I inherited both genes (25% chance). Over the last 30 years, I've had 126 colon polyps removed (all types, all locations). I'm interested in connecting with others who has this rare condition. Thanks

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@colleenyoung
Hi,
My recent surgery was a colectomy with an ileo-rectal anastomosis, so I still have my rectum for stool storage and do not have an ostomy.

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@bethbeep
Hi. I had the same surgery in 2023. Total Colectomy with ileo-rectal anastomosis. Mine was done using the DaVinci robotic. It's amazing that we live in a world with this type of technology in the hands of skilled surgeons.

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