@fsr Good morning Frank
I also have anti mag and see a neurologist who has had a little experience with it. A friend who is a neurologist recommended that I see a neuromuscular specialist but I have not yet. Because we are so rare, there isn't a lot known or studied about the disease. There is an international study occurring at multiple locations in the US and abroad. It is called Imagine https://www.foundationforpn.org/imagine-study/
and is through the Foundation for Peripheral Neuropathy. Hopefully we can find relief sooner rather than later. Hang in there you are not alone
Carol