← Return to PRRT for stage 4 pNET with mets to liver, small intestine & skull

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I had initial PRRT in 2021 with excellent results and some hair loss (also early on). My hair grew back quickly after I completed the 4th round. I am now enrolled in a clinical trial for the new Alpha PRRT after some recent progression, and have just completed my second treatment of 4. I am again experiencing hair loss, but I'm 'coping' by cutting it very short and no blow drying or styling. Time will tell if I make it to the end with my short hair!!! If your scalp feels 'tingly' or irritated, ice packs really help me. I've heard some claims that ice caps can help preserve hair, but I'm not convinced...but it does help to use an ice pack to relieve irritation the couple of days after treatment. My other major side effect is fatigue--which is much less after the first week or two and seems better with treatment 2 than it was with treatment 1--same pattern as I had with the earlier PRRT.

Hang in there, it is worth it! Sending you positive thoughts and energy.

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Replies to "I had initial PRRT in 2021 with excellent results and some hair loss (also early on)...."

@kjstein Many thanks for your kind & very detailed response to my inquiry, I really appreciate your having taken the time to read my inquiry & then share your experience. I live in Alberta, Canada which means that treatment options for this sort of cancer are extremely LIMITED: it’s so vexing for me to study all of the treatments available elsewhere, only to discover that I probably won’t live long enough to receive any really USEFUL treatment options. As a rather snarky aside, I will add that I have repeatedly been offered MAiD (medical assistance in dying) because, after all, as a Canadian who was born & raised & still resides in Calgary, not to mentionhaving spent nearly 40 years representing abused children in my litigation (legal) practice, I AM APPARENTLY NOT WORTH SAVING. What an affront! I wish you great success with your treatment and I will pray for you, if that’s all right 🫂