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Leg Weakness and Mobility Issues
Autoimmune Diseases | Last Active: Apr 7 7:50pm | Replies (134)Comment receiving replies
@itsmeagain thank you so much for sharing . . . I have various autoimmune conditions but am starting to show more neurologic signs (tremors, weakness, hyperreflexia). Rheumatologist is concerned that I am pre-something neurologic and was thinking spinal tap for me, but I now have a clot in my brain so coming off blood thinners to do the spinal tap isn't on the cards.
Do you mind further sharing whether there were other tests that you did that confirmed the CIDP or were they all negative and it was finally the spinal tap that definitively diagnosed it? I have had 6 brain MRI's in the last few months, 4 sets of neurologists, 2 teams of MS specialists and they all concur it's not MS and it's autoimmune in nature . . . but nobody is quite sure what is going on right now. My rheumatologist believes something is brewing it's just early on enough not to show on imaging. I'm so frustrated š
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@pm56
@itsmeagain
Well I had nerve conduction tests but one told that the spinal tap is the final determinant. I had two of them.
Itās a rare and crazy disease with symptoms and actions that can vary from time to time.
Iām learning to walk again and getting Iv treatments twice a month. But lots of numbness, tingling, and some pain.
It affects everyone differently and Iām 83 so thatās probably why I have apparently reached a plateau and donāt seem to be improving any more. Itās a nasty affliction but a lot of people reach remission or recovery.
I certainly wish you the best in your journey.