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GNET Sarcoma-Gastrointestinal Neuroectodermal Tumors
Sarcoma | Last Active: 1 day ago | Replies (34)Comment receiving replies
Hello, my name is Vickie and I’ve been diagnosed with a rare form of cancer, GNET. Was hoping to be able to reach out to somebody who has Experienced this type of cancer.
Replies to "Hello, my name is Vickie and I’ve been diagnosed with a rare form of cancer, GNET...."
Yes, it’s a recent diagnosis and I’m coming to Mayo Clinic Thursday for some testing. I meet with the oncologist at 3:25 in the afternoon after some testing is done.
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Welcome to Connect, Vickie It’s a lonely feeling when you’re first diagnosied with a rare form of cancer and so helpful to be able to speak with others who can relate. There is a discussion in Connect with members who have also been diagnosied or have loved ones with GNET (gastrointestinal neuroectodermal tumors. Please meet @videvale @mijomi in this post from @ksnozal.
-GNET Sarcoma-Gastrointestinal Neuroectodermal Tumors
https://connect.mayoclinic.org/discussion/gnet-sarcoma-gastrointestinal-neuroectodermal-tumors/
Was this a recent diagnosis? What has your oncologist discussed with you regarding treatments?