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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 18 hours ago | Replies (1102)Comment receiving replies
My son has a malignant triton tumor, and he is starting chemo today. We are pushing to get him radiation also. The surgical resection had to happen first, because the tumor was so large. They got the whole tumor March 11, but no negative margins. It grew from his femoral nerve, and his pelvic CT shows possible residual disease or regrowth already. This tumor is also often unresponsive to chemotherapy. But he’s 22, and we’re hoping he responds.
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@stacerph Hello.....while your Son's situation is daunting, and at times overwhelming for you, him and your Family, there are many "success" stories out there, even under the most dire circumstances. As you and your Son may know, or will learn, statistics are not "one size fits all". Each person and their illness is unique and will have unique results. Rely on the Care Team assembled to help your Son, but don't be afraid to question or request clarification for any guidance you receive that raises doubts or uncertainty. BIGGEST HUGS to you and your Son on his care journey ❤️