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Support Group for Those of Us Living With Mild Dementia
I know there is a Dementia Caregiver Support Group.
I would like to have a group for people like me. I am entering the Mild Dementia phase from Mild Cognitive Impairment.
It’s frightening to think about my future.
Could a group for Dementia Patients be started?
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@ashley43725
😂
@kathymj
Indeed.
@craigbyrom
I almost feel this would be a good time for me to start a journal.
It might be fun for my kids to read.
They love my sense of humor. And it might help them later on to understand some of the silly things about dementia and Alzheimer’s.
My mother-in-law had dementia.
At first some of her kids were getting upset about some of the things she said or did.
I asked the nurses how we could adjust to her many times silly conversations?
We were told to just go along with her thoughts and not argue about it or try to make her see she wasn’t correct.
We really came to find out she was really happy in her own world.
And that made it so much easier to accept her as she was.
I also now have 2 brothers with Alzheimer’s. They also seem very happy within themselves. As long as I can see that they are not suffering any pain, I can tolerate their situation.
I have told my girls, if and when I come to that same situation, to buy me one of those life like dolls, and I’ll be so happy to have a baby to care for.
Sorry…I can feel eyes rolling back in your heads already🤣
Kathymj
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2 ReactionsYesterday I had my first round of tests for the research study on Lewy Body disease. This is my third year of 20, only 17 more years to go!
I thought I would post this in case someone out there is thinking of joining a study, or perhaps just interested in what they entail.
The first set of tests involve cognitive function, I’m sure a lot of this is familiar to you all.
Such as drawing a clock to show the time at 11:10, naming various animals from pictures. Being read a list of words and repeating them back, and trying to remember them about twenty minutes later. Also being read a list of numbers and repeating them, also in backwards order. Being read a story and repeating it a few minutes later. Drawing various pictures with increased difficulty.Copying a simple design using red and white blocks ( this one was my biggest challenge, I fear I fared rather poorly on this one).
The easiest test was the blood draw, which I aced 🙂.
All results will be forwarded to my neurologist who will inform me of the results during my appointment at the end of may. They will be compared to the results from previous years.
Next up on April 16 will be MRI with dye and a PET scan if I remember correctly. This will start at 7:15 and generally takes up the whole day.
There are more tests scheduled, but what they are specifically escapes me at the moment. I shall post them after my next appointments.
The cognitive test I found to be rather tiring, but interesting also.
Hang tough everybody! Regards, Ashley