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💜 Surviving Pancreatic Cancer for 3 years and beyond 💜
Advancements in medicine have resulted in an increase in life expectancy.
If you are willing, please consider sharing your personal experience to assist others facing the diagnosis who want to hear your story.
Have you successfully survived pancreatic cancer for a duration exceeding three years?
What was your diagnosis at the time of discovery?
Was the cancer classified as localized, regional, or distant?
What treatment plan was implemented in your case?
Did your treatment regimen include surgery and chemotherapy?
What additional treatments or health regimens did you adopt outside of the medical treatment plan?
What was your overall health status at the time of diagnosis?
What is the current stage of your condition?
Do you possess a genetic mutation associated with pancreatic cancer?
Please reply if you have additional questions I didn’t ask as well.
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@tomrennie I'm having a PET scan on the 6th and see my oncologist on the 14th. I'll see what the story is after that. The chemo induced neuropathy is very bad in my legs and feet and I'm afraid if I go back on Gemcitibine/Abraxane again, I'll be in a wheel chair even if I were to use the cold therapy booties and mittens. Plus double vision from the tumor on the left rectus muscle of my left eye that had radiation therapy done on it. I guess you just have to play the hand you're dealt and do the best you can. Did a mile walk today walking like a duck, but the vendors at the mall are getting used to me, I think. 🙂 Thanks for your reply and concern, sir.
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3 Reactions@ardithbjorge was diagnosed 11/23 stage 1b did a round of folfirinox on my 2nd round went into anaphylactic shock. Switch to Gembrax (spelling) 3 rounds legs swelled and a rash on top of the legs. Tumor shrunk enough for whipple had whipple 7/24 had nothing until January of 2025 cancer showed up did 5 rounds of Radiation one week worth. Now every 3 months CT Scans no detected cancer so far. Fingers are crossed.
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4 ReactionsHi — I wanted to share a couple of things that may be helpful as you’re taking this all in.
Many pancreatic cancers have something called a KRAS mutation, and one common type is KRAS G12D. This simply means there is a specific change in the cancer that doctors are now actively targeting with new treatments. There are clinical trials focused on this mutation, including new drugs, vaccines, and immune-based therapies. It’s an area where real progress is being made.
I also want to mention TriCan Health. They are not a clinical trial themselves, but a service that helps patients find trials that may be a good fit based on their specific situation. It can be a helpful way to navigate options, especially with something like a KRAS mutation.
You don’t have to figure everything out at once, but knowing these options exist can be important as you move forward. If you ever want to talk through it, I’m here.
Wishing you strength and clarity as you take the next steps.
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3 Reactions@56pan Maybe the PET scan will reveal something positive? We can still hold on to some hope can't we? I am positive that the neuropathy can be crippling. I have it in my hands and legs below my knees. I live with compression gloves and knee high socks. I also go through tubes of arnicare gel. They seem to help. At least that is what I tell myself. I have been in wheelchairs, so I understand. Waddling is sometimes the only way to get around. I actually can talk like donald duck, so I have tried to have some fun with it in the past. Wow on the vision. I can only imagine the frustration. I agree on having to play the hand that you are dealt. I wish that I could get some new cards and start the hand all over again. I have too many deuces and not enough aces. Keeping plugging away and hope for the best. That is all we can do sometimes. Good luck to you sir. Let us know how things go ok?
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3 Reactions@htmcintosh Hi and welcome to Mayo Connect. Thanks for sharing your positive journey. Stories like yours give us all hope. What are a few things that you can share that can maybe help the rest of us to continue to soldier forward? Thank you.
@ardithbjorge I am glad that you recovered from the adverse reaction to the chemo and excited that you we able to complete the 25 radiation treatments. My fingers and toes are crossed for positive results on your CT this week, Please let us know, how it goes. OK?
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1 Reaction@htmcintosh thank you for sharing your story. The radiation definitely give us hope!
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1 Reaction@tomrennie Thanks for the encouragement. Yes, will update.
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1 Reaction@tomrennie "I have too many deuces and not enough aces." 🙂 That's a keeper. I'll look up the arnicare gel and thanks for that. Makes me sad to see so, so many scammers on the internet selling neuropathy cures. Snake oil every one of them. I can drive okay if I keep my head turned about 15 deg. to the left to cancel the double vision and it's livable. Yeah, I hope for the best on the PET scan on Wed. but I've prepared myself for whatever it shows. I will keep plugging away and thanks for your time and good wishes, sir.
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3 Reactions@56pan CBD oil twice daily has stopped my pancreatic cancer from growing and in 11 months i will be in remission with SMARCB1/INI1.
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