Anti-mag neuropathy

Posted by fsr @fsr, Mar 24 12:16am

Long standing mild sensory idiopathic peripheral neuropathy. Things changed rather quickly. In retrospect maybe not so quick. In any event, now anti-mag neuropathy. I know it’s kinda rare and just interested in knowing if others are out there.
Fsr

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fsr | @fsr | Mar 30 7:59am

Thank-you for sharing. Curious, did the pins and needles, numbness in your feet come and go or was it constant.

fsr | @fsr | Mar 30 8:02am

Thank-you for sharing. Curious, did the pins and needles, numbness in feet come and go or was it constant?
F

3charlie | @3charlie | Mar 31 6:04am

In reply to @fsr "Thank-you for sharing. Curious, did the pins and needles, numbness in your feet come and go..." + (show)

@fsr fairly constant but varies in intensity.
Sometimes i barely notice it, other times it’s quite painful.

fsr | @fsr | Mar 31 7:17am

In reply to @3charlie "@fsr fairly constant but varies in intensity. Sometimes i barely notice it, other times it’s quite..." + (show)

@3charlie
Again, thank-you for sharing. This is new to me. :(. When you say painful, what do you mean? Have you lost any strength?

3charlie | @3charlie | Mar 31 1:05pm

In reply to @fsr "@3charlie Again, thank-you for sharing. This is new to me. :(. When you say painful, what..." + (show)

@fsr By pain I mean intense sensory type pain. Burning. Pins and needles,
Numbness etc in feet making it very hard to walk very far. I haven’t any weakness though.
No fun, but there are a great many things worse at my age 78

fsr | @fsr | 6 hours ago

In reply to @3charlie "I was diagnosed with with Igm Mgus in May 2023. In Dec 2023 I experienced pin,..." + (show)

@3charlie
C,
Thks for sharing. You mentioned a clinical trial. Would you mine sharing more? I too have anti-mag. Mild for 8 yrs in feet. Now getting much worse.