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Increasing breathing difficulty with Keytruda

Lung Cancer | Last Active: Apr 8 11:53am | Replies (12)

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Profile picture for songinmyheart54 @songinmyheart54

@lycisca I would be very interested in what your oncologist says about your breathlessness.
I have ct scans every 3 months and nothing shows up as far as anything that would cause these breathing issues.
They are so bad I am literally gasping and feel I could take my last breath any minute.
I pray you have some answers.

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Replies to "@lycisca I would be very interested in what your oncologist says about your breathlessness. I have..."

@songinmyheart54
I’m sorry you are experiencing this and hope you find answers.
Do you have a pulmonologist? My oncologist advised me to get one and I had my first appointment yesterday. He has ordered two tests before making any treatment proposals and told me it was unusual to have oxygen requirements increase as rapidly as mine have. I’m on 24/7 continuous oxygen at 6 lpm. It will be a couple of months before all the results are in. Then I have a follow up appointment and I am hopeful for a treatment to be found that can help my condition. Good luck to us all!

@songinmyheart54
I'm sorry to hear that your breathlessness is so severe. Fortunately, mine is not that bad. After reading your post, yesterday after I did some modestly active work, I took my oxygen reading and it showed my oxygen at 94, so it appears to me that my problem is not the same as yours. I haven't yet contacted my oncologist because right now, she's helping me cope with digestive upset which may be contributing to my weakness.
I sincerely hope you find out what's causing the extreme breathlessness. You'll be in my thoughts and prayers.