← Return to University of Chicago for Osteoporosis care?

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@beachesanddreams A lot of logistics to juggle that's for sure. It's encouraging that the person who made the appointment shared her own story and didn't treat your call as just scheduling a routine appointment.

I wanted to also let you know that I, too, was diagnosed with a tarlov cyst many years ago. When I got home and did some research, I became worried, but for whatever reason, that cyst has not caused any special side effects that I'm aware of. Maybe I was lucky in where exactly it was located.

I'll hold good thoughts for you on both the U of C consult and the tarlov cyst. Even if you have to cancel the U of C appointment you just made to take care of other health issues, you now have one resource you can keep ready for when you are ready!

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Replies to "@beachesanddreams A lot of logistics to juggle that's for sure. It's encouraging that the person who..."

@prarysky I’ve had lower back pain since 2022 after a COVID infection, followed one month later by Influenza A. I was a teacher at the time, was freshly vaxxed for both, still masking, but hey, a girl’s gotta eat during the 8-hour day, and kids come to school so sick.

The back pain afterward was terrible. I figured all those high fevers “settled” into my back. We know better now.

Then in 2024, I broke my ankle (not OP related, according to my orthopedic surgeon). I was off my feet for six weeks, then wore that boot, and the pain was excruciating. I had PT for both my back and ankle.

First rheumatoid diagnosed me with psoriatic arthritis without so much as a single MRI to my lumbar spine. He put me on methotrexate and SKYRIZI. Second rheumatologist did an MRI; turns out, there is no current or past indication of inflammatory arthritis in my lower back. Just Tarlov cysts, with a hemangioma as a side dish.

I’m managing the symptoms so much better now (again, thanks to Dr. Google), BUT, I do have weakness in my left leg as a result. So somewhere, something is hitting a nerve. The thigh pain used to wake me at night, but with stretching, exercise, heat at night and ice in the morning, I’m doing so much better without medication. (First doc tossed sleeping pills at me, and when they didn’t work, told me to take more. 🤦🏻‍♀️)

I need to treat both the cysts and OP together, but I am getting zero guidance as to how to do it. I’m holding my own, but it’s a little scary out here.

I’m glad you didn’t have symptoms from your cysts. My research shows me that is the case for many, and I’m happy you have no pain or discomfort.