Undiagnosed and unsure if it's all in my head
I've had peculiar symptoms for months starting October 31st. What started as eye droop, went to pins and needles (tingling) across my left arm and leg and then spread to the rest of my body. For weeks, I had issues when I first woke up from getting off the bed and generally had struggles with some day. Since my symptoms are acute, I believe when it goes away for a few weeks it's gone.
Since of my eye pain and fluid leaking out of one of my nostrils doctors had considered IIH/csf leak for sometime, but the lumbar puncture came back 19 (so practically normal). I had no papilla edema when tested by the eye doctor. Since, previously at the beginning of the journey doctor's have labeled it stress related and have mentioned me to being hyperfocused on my sensations, I am wondering if there is a possibility this is all in my head.
Of recently I have been dealing with weird stiffness in my right arm, going to my knees and legs. The pins and needles flared again after a two weeks or so with minimal sensation. I had tests for autoimmune, but everything came back normal. I have no idea what else to do at this point, I have a follow up with neurosurgery, but I don't know what else to do. As a younger individual, I feel dismissed by so many of my doctors and have been online for school for this semester due to this. Rheumatologist immediately said there was no way that anything autoimmune was going on a few days ago, so I went home immediately. I have had spine and brain MRIs (had chiari 11.75mm, but probably unrelated) and EMG, at this point I probably have nothing left to explain it atp.
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Thank You ,was a long time ago but still bothers me , i make due- Ps Happy
Easter today and to everyone on your team.
Thank You for the hug and Happy Easter.
Update: Talked to duke today and they considered putting me on thaizolimide for the intermittent leaking. They said that the Contrast spine and brain mri was not necessary. They are looking to do a neck turn mri or smth regarding my spine C2 bone? Said my brain fluid probably fluctuates or something.
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1 Reaction@grass16 seems like a step forward … perhaps this will give an answer to your problem with stiffness in your arm and leg or lead to further investigation. If you get no satisfactory answers though, do consider going to either the Mayo Clinic (I believe there is one in Florida …?) or a Cleveland Clinic in either Georgia or Florida.
Hopefully you will find an answer at Duke and will not have to look farther … 🤞🏼🙏🏼